Happily Ever Avery // Crazy How Fast Life Comes at You Sometimes
1 year ago, we found it was a girl! Now, we’re waiting on a different set of results. It’s crazy how fast life can come at you sometimes.
Happily Ever Avery // Will We Go to CAR-T or Bone Marrow Transplant
We still don’t know the percentage of leukemia cells in her bone marrow. Will we go to CAR-T or bone marrow transplant after this round.
Happily Ever Avery // We Just Want Good News
Our biggest concern about the results is still the myeloids. Best case scenario is that they do not show AML cells. We honestly just want good news in the next few days.
Happily Ever Avery // Biopsy Results Not What We Were Hoping For
The FISH results from last week’s biopsy show 15% ALL (Acute Lymphoblastic Leukemia) cells in her bone marrow.
Happily Ever Avery // Big Week Ahead in Terms of Next Steps
Platelets are up! Liver numbers are down. ANC is slowly rising. Please continue to keep Avery in your thoughts this week. It’s a big one!
Happily Ever Avery // Officially Moved to Bone Marrow Transplant Unit
Our 4 weeks in this room was almost up, so they’ve officially moved us to the Bone Marrow Transplant Unit in preparation for CAR-T Therapy.
Happily Ever Avery // Groggy Start But a Strong Finish
After a groggy start (due to her biopsy) and a few good naps, she had a really good afternoon and evening for a string finish to her day!
Happily Ever Avery // We Had a Pretty Rough Night
Late last night, Mom was texting because Avery was having a rough night. She’s been uncharacteristically tired. Not lethargic, just fatigued.
Happily Ever Avery // Happy 7 Months!
7 months old today! Avery likes cuddles with blankets, long walks, being thrown in the air, bananas, and Super Simple Songs.
Happily Ever Avery // Keeping On… Keeping On
We need her numbers up before Thursday’s biopsy. In the meantime, we’ll just keep playing and keeping on… keeping on.