Happily Ever Avery Settling Into a New Routine

Mom and Dad are settling into their new apartment with Big Sis… and a new routine with Avery.

Today was Mommy/Avery day! After 48 hours away with the move, Mom was more than excited to get back to her baby.

Avery is still doing well. Her original PICC line area is healing well and looks great!

She’s showed no other signs of infection from the initial redness, and she seems to be adjusting to the new PICC line well.

Although, because it’s under her right arm, we had some trouble with her line becoming occluded/pinched. Mom has found a way to make her Little Sleepies work with the new line, so that’s been a big help.

No more beeping lines.

HAE - working on pulling up and standing

Avi’s still working on her leg strength and doing all the baby things.

Plus, her appetite is well enough that they lowered her IV fluids today. She went from 30 down to 10!

Like I said, she’s just doing her thing and we’re all waiting for her numbers to climb so we can move to the next step!

Follow Avery’s journey with Leukemia here

Read Original Facebook Post Here
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How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

Instagram handle: @ourhappilyeveravery

365 Days of Gratitude

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