CHEMO STARTED… AGAIN
Once again, Avery did amazing!
Her nurse and the charge nurse both came in to cheer for her because she did so well.
She had her LP this morning. In addition to drawing two vials of Cerebral Spinal Fluid (one for oncology, one for the CAR-T team), they also gave her two chemo medicines in her spine.
Around 3:00pm, they began the other medications.
PEG. This was the one that we were anxious about.
PEG can cause severe adverse reactions in some patients requiring the use of an EpiPen.
Therefore, the team had to be on standby for 15 minutes after administering it to ensure nothing went wrong.
Avery had no problems!! Whew.
She’s taken it before, but reactions to it typically occur after the second dose.
That ran for 2 hours, and with the addition of two other medications, she was done for the day.
Five medicines total today and she did great!
Plus, she ate every 2 hours and was kicking and playing during her treatments.
She is our big WARRIOR BABY!
Pray she has no side effects to the medicines, they’ll introduce another one tomorrow, and that it works!!
REMISSION IS THE GOAL!
Follow Avery’s journey with Leukemia here
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Looking for more clarity in your life?
Sign up to receive practical tips to start journaling to bring more clarity into your life.