New chemo plan
Meet Avery

Chemo starts again tomorrow

Y’all. This sweet baby.

She is going on about her day today as if nothing is out of the ordinary for her. How I wish we had the resilience of babies.

She keeps us going every day.

Now for today’s update:

They took the collection lines out today (they’re the red and blue ones you see coming off to the right) and she had an ECHO to get a baseline on her heart.

She’ll get a lumbar puncture in the morning and then start her new chemo plan tomorrow afternoon.

The Doctors have decided since she went into remission with the medications used during Induction, we’re going to use the same regimen, with a new drug added to the mix.

She’ll be on a 35 day, 5 weeks regimen; mostly inpatient.

She may get to come home a day or two here and there based on her ANC, but will primarily be at the hospital for the duration.

Lumbar punctures are scheduled for Day 1 and Day 15.

Bone marrow biopsy will be (most likely) the week after she finishes chemo.

Then she’ll have a 4-day small dose chemo before the T-Cell infusion.

So, tomorrow will be a big day as she starts the strong meds again.

Pray she handles everything well. We continue to see no infections or adverse reactions. And, as always, pray for our anxious hearts.

Follow Avery’s journey with Leukemia here.

How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

Instagram handle: @ourhappilyeveravery

365 Days of Gratitude

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