Today was a long day for a variety of reasons.
To begin with, we moved rooms again!
Our 4 weeks in this room was almost up, plus they’ve officially moved us over to the Bone Marrow Transplant Unit.
This is in preparation for her CAR-T Therapy. We are still unsure of the transplant at this time.
Unfortunately, we’re also still unsure of her bone marrow biopsy results.
We did receive some preliminary information today, but, as we thought could happen, the sample they were able to get wasn’t conclusive enough.
Therefore, we’ll see what the FISH (Fluorescence in situ hybridization is a test that “maps” the genetic material in a person’s cells) results say on Monday.
Either way, Avery is scheduled for another biopsy on Tuesday to get a more accurate look at her cells (and confirm today’s results).
This means her CAR-T chemo will tentatively start at the end of next week.
It doesn’t necessarily put us a week behind because we were testing a week early, so we’re simply back on our original schedule.
Please continue to pray for good results; specifically either REMISSION or less than 5% of cancer cells.
Otherwise, this cutie is just going to keep on keeping on… and eating up all the good baby food.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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