this is so hard
Going to be incredibly vulnerable here. I hate pictures of myself, but I am big on taking photos. I want to capture everything.
Just before these were taken today, Avery was smiling and babbling a little.
PaPa grabbed his phone for a picture and then this happened. It was more the norm today.
A few things about our sweet Avery:
- she is rarely ever sad, hence the page name
- even if she gets upset, it’s normally just a little whining, rarely full-on tears
- she doesn’t normally like to be held chest to chest, she has always preferred looking outward
- she doesn’t drool a lot; her shirt was soaked here because it hurts for her to swallow
Today? All of that was flipped upside down. She would be happy and content and then just start to cry the saddest, most miserable cry with huge crocodile tears.
She was only at our house for a couple hours today. I cried when she cried. I’m still crying.
Mom & Dad have to do this on a full time basis.
They called the Oncologist and were given the go ahead to increase Tylenol dosage to every 4 hours instead of 6.
If the pain doesn’t improve, they’ll have to call the hospital, take her to the ER, and get morphine.
Please pray for our precious baby… and for our hearts. This is so hard.
CANCER SUCKS ?
Specific prayer requests:
- they get her pain under control
- she starts eating
- no infections
- strength and comfort for Mom & Dad
Follow Avery’s journey with Leukemia here
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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