Normal Baby Days
As I mentioned yesterday, Avery is doing so well at home.
She had a bit of a restless night, but still seems to be in a good mood.
Again, the chemo medicine she is taking at home was the only one that seemed to cause adverse reactions at the hospital.
The dosage is a little higher, but she’s had no fever and just seems to be uncomfortable from it.
But, it’s not stopping her from trying to roll and get her thumb into her mouth!
As a side note, Mom is looking for port-friendly clothes.
This romper from Ready Set Romper is great for accessing her PICC line!
Bamboo baby clothes also seem to work well with her due to not being able to always control her body temperature.
Plus, they’re so soft and gentle on her sensitive skin.
If you have any other brands we should check out, please let us know on the Facebook post linked below!
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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