Happily Ever Avery // The Wait Begins... Again

Avery had her bone marrow biopsy first thing this morning.

She did well and now we just wait.

Her Oncologist put in a rush order, but, unfortunately, some of these results take a few days to come in.

Next-generation sequencing (NGS)

We did get some GOOD NEWS though: her NGS from her last biopsy was NEGATIVE!

That means all of her results from that biopsy showed negative MRD!

Meaning, CAR-T was the right treatment for Avery. It 100% worked!

But, as is the nature of cancer cells, they can multiple fast as well.

That’s why we’re re-testing once more this week (and putting a rush on every result) so we can confirm her MRD is still negative.

If it shows negative, we will start her conditioning chemo ASAP and get ready for Bone Marrow Transplant.

Bone Marrow Transplant (BMT)

Her donor has been selected and we’ve been told collection will likely happen next week!

I cannot tell you how grateful we are for those who donate (and simply register) with Be The Match to be a donor.

You’re literally saving Avery’s life and changing ours!

Thank you!

Please keep Avery in your thoughts and prayers this week as we wait.

We need negative MRD to proceed straight to BMT.

Follow Avery’s journey with Leukemia here.

Happily Ever Avery Blog Banner

How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

Instagram handle: @ourhappilyeveravery

365 Days of Gratitude

Similar Posts