We had a great staycation this week! It was only 3 nights and about 45 minutes from home, but it was a terrific time away.
We laughed, ate, played games, ate, swam, and ate some more.
Even though Avery couldn’t get in the pool, she still enjoyed playing poolside in her personal inflatable baby shark pool.
The open wound on her toe (and the reason she couldn’t get in the water) is healing nicely, so she’ll finish her antibiotics soon and, hopefully, we won’t have to worry much more about it.
In fact, at her clinic appointment yesterday, everything looked great. The only bad news is that her ANC is back down to 150.
I cannot explain to you how much anxiety neutropenia causes… especially in the middle of a global pandemic. Since Avery has to go to the hospital twice a week, it’s impossible to not worry about her catching ANYTHING.
For now, we’re going to take the weekend to rest and love on our sweet girl.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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