Happily Ever Avery // All the Vacation Vibes This Week

We had a great staycation this week! It was only 3 nights and about 45 minutes from home, but it was a terrific time away.

We laughed, ate, played games, ate, swam, and ate some more.

Happily Ever Avery // All the Vacation Vibes This Week

Even though Avery couldn’t get in the pool, she still enjoyed playing poolside in her personal inflatable baby shark pool.

Family Vacation Vibes

The open wound on her toe (and the reason she couldn’t get in the water) is healing nicely, so she’ll finish her antibiotics soon and, hopefully, we won’t have to worry much more about it.

In fact, at her clinic appointment yesterday, everything looked great. The only bad news is that her ANC is back down to 150.

Happily Ever Avery Sister Vacation Vibes

I cannot explain to you how much anxiety neutropenia causes… especially in the middle of a global pandemic. Since Avery has to go to the hospital twice a week, it’s impossible to not worry about her catching ANYTHING.

Finally, she has her first post-CART bone marrow biopsy on Tuesday. We’re both hopeful and anxious. The expectation is REMISSION and we’re going to cling to that for now.

Happily Ever Avery Vacation Vibes napping

For now, we’re going to take the weekend to rest and love on our sweet girl.

Follow Avery’s journey with Leukemia here.

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How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

Instagram handle: @ourhappilyeveravery

365 Days of Gratitude

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