Therapy is progressing well
- WBC: 1.6
- Hgb: 7.8
- Platelets: 61
- Uric acid: 4.4
- Potassium: 5.8
- Phosphorus: 5.4
- ANC: 0.53
- Blasts: 4.3
No blood or platelets needed today.
They’re still watching Uric acid and potassium numbers. May restart Uric acid meds and start a potassium one as well if they keep trending upwards.
Has started blood pressure medicine after this weekend’s episode.
Pain could have caused her BP to rise on Saturday, but they can’t be sure it wasn’t medicine, so observing.
Still considering stopping IV fluids. This weekend’s feedings were off due to the insomnia/pain episode on Saturday and catching up on sleep on Sunday.
She’s sleepy this morning after an “off-night” in the hospital, but otherwise good.
Therapy is progressing well so far.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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