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Our Family Lifestyle

Avery

You Are Here: Our Family Lifestyle » Avery » Page 3


Our granddaughter was diagnosed with Pre B-Cell Acute Lymphoblastic Leukemia at the age of 7 weeks. Follow her journey as we, her family, choose to stay positive as we continue to believe in our Happily Ever Avery.

Happily Ever Avery We Just Want Good News

Happily Ever Avery // We Just Want Good News

May 25, 2021October 27, 2021 Updated onOctober 27, 2021

Our biggest concern about the results is still the myeloids. Best case scenario is that they do not show AML cells. We honestly just want good news in the next few days.

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Happily Ever Avery Biopsy Results Not What We Were Hoping For

Happily Ever Avery // Biopsy Results Not What We Were Hoping For

May 24, 2021October 27, 2021 Updated onOctober 27, 2021

The FISH results from last week’s biopsy show 15% ALL (Acute Lymphoblastic Leukemia) cells in her bone marrow.

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Happily Ever Avery Big Week Ahead

Happily Ever Avery // Big Week Ahead in Terms of Next Steps

May 23, 2021October 27, 2021 Updated onOctober 27, 2021

Platelets are up! Liver numbers are down. ANC is slowly rising. Please continue to keep Avery in your thoughts this week. It’s a big one!

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Happily Ever Avery Officially Moved to Bone Marrow Transplant Unit

Happily Ever Avery // Officially Moved to Bone Marrow Transplant Unit

May 21, 2021October 27, 2021 Updated onOctober 27, 2021

Our 4 weeks in this room was almost up, so they’ve officially moved us to the Bone Marrow Transplant Unit in preparation for CAR-T Therapy.

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Happily Ever Avery Groggy Start But a Strong Finish

Happily Ever Avery // Groggy Start But a Strong Finish

May 20, 2021November 4, 2021 Updated onNovember 4, 2021

After a groggy start (due to her biopsy) and a few good naps, she had a really good afternoon and evening for a string finish to her day!

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Happily Ever Avery We Had a Pretty Rough Night

Happily Ever Avery // We Had a Pretty Rough Night

May 19, 2021October 27, 2021 Updated onOctober 27, 2021

Late last night, Mom was texting because Avery was having a rough night. She’s been uncharacteristically tired. Not lethargic, just fatigued.

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Happily Ever Avery Happy 7 Months!

Happily Ever Avery // Happy 7 Months!

May 18, 2021October 27, 2021 Updated onOctober 27, 2021

7 months old today! Avery likes cuddles with blankets, long walks, being thrown in the air, bananas, and Super Simple Songs.

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Happily Ever Avery Keeping On… Keeping On

Happily Ever Avery // Keeping On… Keeping On

May 17, 2021October 27, 2021 Updated onOctober 27, 2021

We need her numbers up before Thursday’s biopsy. In the meantime, we’ll just keep playing and keeping on… keeping on.

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Happily Ever Avery Sweet Smile Says So Much

Happily Ever Avery // Sweet Smile Says So Much

May 14, 2021October 27, 2021 Updated onOctober 27, 2021

Another FriYAY and her sweet smile tells you so much. No chemo meds. We’re now waiting for her numbers to rise.

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Happily Ever Avery Calling Audibles on Treatment

Happily Ever Avery // Calling Audibles on Treatment

May 13, 2021November 4, 2021 Updated onNovember 4, 2021

Avery’s medical team met today and made a few audibles in her therapy going forward; they’ve decided to stop chemo.

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