trying to document this experience so that we can look back and see how far we will have come. recording the sad moments are so hard… today has been a sad one. for the first time avi girl is just not herself… she’s sad and uncomfortable. it’s so hard to watch and be unsuccessful in comforting her. today we took a walk and it was the first time avery left her room for over a week… just so many emotions today.-mama
They were unsuccessful at the LP again today. Avery just wouldn’t sit still for it; even with some nitrous.
The good thing is they didn’t stick her today. They couldn’t get her comfortable enough to do the procedure.
They won’t try again until the next scheduled one on Day 15. We’re on Day 10.
They hope to come up with a better plan by then. Otherwise today has been about keeping Avery comfortable.
She is beginning to feel some of the pain of the chemo and they are going to try some IV meds to help control the pain… and allow her to sleep.
She’s been awake most of the afternoon unable to stay asleep.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it to me via PayPal and I’ll send it straight over to them: https://www.paypal.me/stacisalazar
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Looking for more clarity in your life?
Sign up to receive practical tips to start journaling to bring more clarity into your life.