infant pulling oxygen mask after lumbar puncture

Today was procedure + chemo day, so not one of the best.

Her LP was early this morning and preliminary results show NO SIGNS OF CANCER. This is always welcome news.

They still injected three chemo meds into her spine for preventative care moving forward.

Today was also time to start her chemo meds again. (She typically has 5 days on, 2 days off with an oral chemo nightly).

Therefore, the LP combined with the medications make for a miserable baby. Nausea + pain.

Mom and Dad are doing their best to help keep her comfortable as the medical team is trying to determine the right mix of meds to help her as well.

Because we’ve been doing this for 4 months, we typically know which days to expect this sort of reaction, but it doesn’t make it any easier.

It’s tough seeing your baby in pain.

Pray she is able to find relief and feels better tomorrow.

We’re on Day 8 of 27 with chemo meds.

Follow Avery’s journey with Leukemia here.

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How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

Instagram handle: @ourhappilyeveravery

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