Lumbar Puncture Expectations
They just took Avery down for the PICC line and spinal tap. They said it should take 3-4 hours, plus any post-op time.
The oncologist still can’t confirm the type because the lab doesn’t have those results yet.
She also told them they fully expect to see some of the leukemia in Avery’s spinal cord. In infants, that’s a common place for the cells to migrate to in the beginning. She wants to make sure we go in with that expectation.
If there are none there, that would be fantastic. At least we know from the CT scan last night it’s not in her brain.
Mom and Dad are headed to a hotel for the evening so they can get some rest and shower while Avery is with the NICU team this evening. We’re meeting them there so they can spend time with Big Sister.
We’ll update everyone once Avery is through the procedure.
Avery is back in her room. Everything went well with the procedure. She is sleeping now. They just took some labs to check everything to see if they can remove her tube.
Mom and Dad don’t want to see her intubated, so they’re waiting until they take the tube out to head back to the hospital.
Otherwise they’ve enjoyed their time this evening with Big Sis.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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