Mom and Dad spent another quiet day at the hospital with Avery.
Fortunately, today was a good day considering tomorrow is another procedure day.
Today she’ll receive some blood since her hemoglobin is nearing 7 and she has an LP and chemo tomorrow.
As a reminder, the LP tomorrow is to not only draw another CSF sample, but to administer more chemo into her spine based on the minute amount of Leukemia cells found there.
Otherwise, Avery is doing her best to sit up unaided (and it obviously is hard work, hence the napping picture).
Her Physical Therapist is going to find exercises to help Avi get up on her knees because she’s really wanting to crawl.
Finally, her Nutritionist came in to talk about Avery’s fluctuating weight (it’s currently down again). She said she’s not really concerned based on her charts.
Avery’s nausea stays mostly under control, but it can definitely have a part in when she eats well and when she doesn’t.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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