You never know when the effects of your cancer, your chemo, or anything else will hit.
With babies, you’re asking yourself, is this normal baby stuff? Is it her chemo? Another medication?
Is it a tumor this time? SO.MANY.QUESTIONS. And, unfortunately, when it comes to babies, they can’t communicate what’s wrong.
You and the doctors are left guessing. That’s basically where we are now.
They’ve run a dozen labs. She’s had a CT scan. Her care team is going through every possible scenario.
Right now, they’re watching her blood sugar closely.
They noticed it jumping from 120 (yesterday) down to 43 this afternoon.
It rises and falls as she eats. Sometimes rather quickly.
I am hypoglycemic. Diabetes runs in my family.
But, after asking other infantile cancer parents and doing research, hypoglycemia is a (somewhat) common condition with one of her medications.
Therefore, as mentioned above, they’re checking everything. She now has an endocrinology team added to her specialty doctors.
They are doing finger pricks every couple of hours and monitoring her blood sugar.
She, most likely, will be staying another night as they continue to monitor her.
We have no solid answers yet. Just waiting.
If nothing else, we’re glad it doesn’t appear to be anything alarming (at this point). We’re hoping they find an answer soon and the solution is an easy one.
Until then, please keep lifting up our sweet girl.
How you can help from home
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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