Since coming back down to BMT, she’s been much more comfortable.
In fact, she’s been sleeping most of the day.
The morphine drip seems to be keeping her comfortable and her Tylenol is back on some sort of schedule.
Unfortunately her fever still hasn’t broken. It’s currently at 101.8°F.
To our dismay, the Nurse Practitioner said this could last through the week.
But, I asked, and she confirmed, that this is pretty much textbook for what they see with CRS (Cytokine Release Syndrome).
Our goal for now is to keep her comfortable (morphine, Tylenol, cooling pad) until she gets through this.
One final thing, Papa and I have sent Mom & Dad home for some rest.
Now that we’re back on BMT, where we already have clearance, it seemed like a good time to switch.
They both needed to get away for a bit for their own physical and mental health.
So, they are spending time with Big Sis while we hang out with Avery tonight.
Praying they get some much needed rest too.
Our continued prayer for Avery is still that the fever breaks to give her some relief, and that we can keep her comfortable until that happens.
Follow Avery’s journey with Leukemia here
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
Looking for more clarity in your life?
Sign up to receive practical tips to start journaling to bring more clarity into your life.