This sun-kissed baby is just the cutest!
Avery had clinic again today.
First, she had to get her second set RSV shots today. We have to take every precaution to keep her well.
Second, her Oncologist laid out what we should (tentatively) expect over the next 6 weeks.
BRIDGING CHEMO includes:
Daily oral medicine that triggers a “death switch” the cancer cells (we are awaiting FDA approval for Avery to get this drug) plus the following weekly meds:
- Week 1: Vincristine + Dexamethasone (steroid)
- Week 2: PEG (Pegaspargase)
- Week 3: Vincristine + Dexamethasone (steroid)
- Week 4: PEG (Pegaspargase)
- Week 5: Lumbar Puncture + Bone Marrow Biopsy (possible conditioning chemo based on results, aiming for ZERO MRD)
- Week 6: Bone Marrow Transplant (tentative as it’s based on biopsy results; if cancer cells are still present we would repeat the last 4 weeks of chemo and test again)
So, we have one more week without chemo before we dive right back in next Thursday.
Until then, we’re trying to spend as much time with her as a family as we can and simply live in the every day moments.
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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