Well, we’re still in the hospital. As you can tell by the many brightly-colored bandages on her little fingers, she’s also still getting finger pricks around the clock.
She’s beyond done with everything at this point.
But, her blood sugar levels are still going up and down. Her care team doesn’t want to send her home and have her sugar levels drop to dangerous levels.
They still aren’t 100% sure on the cause, but are definitely leaning towards the 6-TG chemo medicine she had been taking nightly at home.
She actually finished it last week, so now we have to wait for the levels to decrease in her body.
Why don’t they test the levels of 6-TG in her body to confirm?
Good question! The results from the test won’t be back for ten days and, we’re hoping, the medicine will have metabolized by then and the issue will resolve itself.
The graphics below show some explanation behind the low blood sugar.
Again, at this point it’s simply our best guess.
The positive news:
- They’ve been able to get her pre-BMT scans and tests done
- She had music therapy today and LOVED IT!
- They are putting her on fluids so only one finger poke tonight
No idea when we’ll get to bring her home yet, but we’re glad she is starting to feel better!
How you can help from home
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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