Happily Ever Avery // Bit of a Hit or Miss Day

COMBINATION OF THINGS

This blue-eyed baby. How we love her so.

Avery started the last of her chemo meds today. Fortunately, it’s one she’s been taking since the beginning, so no new side effects to worry about.

But, that doesn’t alleviate all of the effects of the medicines.

Today has been a bit hit or miss.

She is hungry (growth spurt + steroids) and sleepy.

But also appears to be nauseous, irritable, and somewhat uncomfortable.

It can be a combination of things:

  • side effects of medications
  • back pain from yesterday’s LP
  • headache from anesthesia yesterday

The hard part here is simply her lack of ability to communicate.

Her care team does their best to cover every possible ailment and pain to keep her feeling as well as can be.

Mom and Dad do their best to help communicate her actions and to love on her to keep her as comfortable as possible.

It’s a delicate balance of finding exactly what she needs. And when everything comes together perfectly, sweet Avery is right back to her fun, babbling, smiling self.

Those are the best parts of the day.

Please keep praying for more of those good parts in the days and weeks ahead.


Last, but not least, we want to send a BIG THANKS to Be The Match for sharing Avery’s story today!

In their honor, here’s your daily reminder (especially those 18-44) to join the national registry to be included in the search for a donor for Avery!

A FREE kit will be sent to you. Just mail it back ASAP.

You can easily click this link or simply text everavery to 61474

Help us bring awareness by sharing with others.🗣

Remember: YOU could be the CURE! 🎗

Also, please continue to share and/or donate to the GoFundMe.

Follow Avery’s journey with Leukemia here


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How can you help from home?

First, prayer. We need to continue to storm the gates of heaven for Avery.

Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.

For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia

To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/

Email for digital gift cards here: [email protected]

Join the National Bone Marrow Registry at Be The Match if you would like to be included in the search! Just click this link https://join.bethematch.org/everAvery or simply text everavery to 61474

Want to send cash straight to Chey through Cashapp? $CheyenneShipwash

Or you can send it straight to Nic through Venmo: @NKiernan

Want to send tangible gifts? We’ve set up an Amazon Wish List.

Purchase a shirt here: Happily Ever Avery products

Facebook page for updates: Happily Ever Avery

365 Days of Gratitude