❝You were assigned this mountain to show others it can be moved.❞
– Shanee Wilson
This week has been an anxiety-ridden nightmare. At least for us adults. Gratefully, Avery doesn’t understand the waiting.
She’s been having so much fun playing with her Big Sis, eating all the things, and simply enjoying life at home.
For us, the worry began even before had her bone marrow biopsy this week. We’ve been anxious for these results since her CAR-T infusion.
So much of Avery’s next steps are riding on these results.
We finally got a call this morning from the CAR-T team:
We could not be more thrilled! Remission was the best possible scenario.
We did receive a preliminary call earlier this week that may have caused a bit more apprehension.
We were told her results showed a higher level of B-cells than the average post-CART patient.
Fortunately, they were good B-cells, so there’s that!
But, we were told this could mean the T-cells went in and did their work as intended, but may have exhausted themselves while doing so.
So, knowing that, along with a few other factors they’ve have been notating along the way, the doctors want to send Avery straight to Bone Marrow Transplant while she is in remission.
There’s no guarantee her cancer won’t come back. That it won’t switch to AML. That it won’t come back more aggressively.
Bone Marrow Transplant is our best chance at leading to Avery being CURED!
Is childhood cancer curable?
We’ve been told by our doctors that, “If you remain in complete remission for 5 years or more, some doctors consider you cured.”
We’re looking at a 4-6 week window before BMT as the search for a donor begins, collection is done, and everything is ready to go.
We should find out more at next week’s clinic appointment.
That being said, here’s your daily reminder (especially those 18-44) to join the National Bone Marrow Registry at Be The Match.
A FREE kit will be sent to you. Just mail it back ASAP.
You can easily click this link https://join.bethematch.org/everAvery or simply text everavery to 61474
Help us bring awareness by sharing with others.🗣
Follow Avery’s journey with Leukemia here.
How can you help from home?
First, prayer. We need to continue to storm the gates of heaven for Avery.
Their biggest tangible needs are food and money. Even with insurance, the costs are undoubtedly going to continue to add up.
For starters, we set up a GoFundMe with a tentative amount that will most likely go up as we continue: https://www.gofundme.com/f/help-baby-avery-beat-leukemia
To help them stay fed while at the hospital, we’ve found DoorDash gift cards are best: https://doordash.launchgiftcards.com/
Email for digital gift cards here: [email protected]
Want to send cash straight to Chey through Cashapp? $CheyenneShipwash
Or you can send it straight to Nic through Venmo: @NKiernan
Want to send tangible gifts? We’ve set up an Amazon Wish List.
Purchase a shirt here: Happily Ever Avery products
Facebook page for updates: Happily Ever Avery
Instagram handle: @ourhappilyeveravery
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